In October of 2018 I had open heart surgery to correct a congenital heart defect. This is the first post in a series of posts about my surgery. These posts will tell my story through open heart surgery. If you haven’t already, check out the rest of the My Story posts. In summer of 2018 I found out that I had a congenital heart defect - atrial septal defect of the sinus venosus type with partial anomalous pulmonary vein return. I had open heart surgery at Boston Children's Hospital in October 2018. Before my surgery I wanted to find some information on what would happen, how it would feel, and what the recovery would be like. I was frustrated that there was very little information about older kids having open heart surgery. I made this blog as a resource for other older kids that may be looking for answers as they prepare for this surgery. I found out that I had a heart murmur from my doctor in May 2018. The pediatrician sent me to have an EKG in the cardiologist's ...
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